I might be clicking my heels together three times if I had a pair of sparkly red shoes. Only, I don’t want to go home, I want to go to the end of my recovery.
Most every IBDer is an adapter since we do not experience perfect health 24/7. We learn how to push ourselves and we do the seemingly impossible, usually on a daily basis, to function as ‘normal’ people when we’re ill. More times that not, we adapt.
And thus, I have. But it’s a whole different ball game when it’s after surgery, or so I have found. Adapting no longer means really participating in your life as much as it means you empty the bag often and watch a lot of Everybody Loves Raymond. And that’s okay, that’s called recovery, not a word I’m used to and not a sideline I’m used to either.
So I am on a yellow brick road - a very long one - but on one nonetheless. It’s twisty and the bricks aren’t all even, but I’m on it. What I am so quickly tripping towards? A full recovery, a day when I can stand for hours, when I can get back to school and be independent. I’ll be there soon, with scraps on my knees, but I will be there.
Nothing and no one is perfect. I recently campaigned for smaller ostomy bags since the ones I had were massive and impossible to dress with. And the new bags are great, much smaller and much better for wearing real-live non-recovery actual clothing. The downside - the smaller the bag the more frequent it needs to be emptied. Which is fine, but it poses a potential issue at night since it fills up quicker. And since I’m already have the habit of sleeping poorly down-pat, checking the bag throughout the night isn’t a problem. But it occurred to me this morning as I was cleaning up the bathroom after spilling the contents of the bag on the bathroom floor by accident, that there’s still some curve balls left in the learning.
But what I do know for sure is that no matter how many curve balls there are, I won’t strike out - because there’s no score-keeping, no limit to falling down, and no one-way to do it right.
So off I go - tripping into the distance - trying to do it as gracefully as I can.
Jennie
The Gutsy Generation is an initiative by the Crohn's and Colitis Foundation of Canada's (CCFC) Youth Advisory Council (YAC) to foster awareness, support and action about Inflammatory Bowel Disease (IBD). IBD is a chronic autoimmune disease, affecting about 233,000 Canadians - with many diagnosed between 15-24 years of age - and costing the Canadian economy almost $3 billion annually. It's time to speak out and get up - coming out of the bathroom stall to find a cure!
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