Hey Gutsy Generation,
It's time for challenge #3?
Today it's kind of easy, Say "Hello" to a random person. It could be as easy as walking down the street! Let us know if anything interesting happens!
Good luck!
Colleen
Wednesday, December 15, 2010
Tuesday, December 14, 2010
Relationships!
Relationships…At one point it was something I didn’t think much about. I didn’t care if I had a boyfriend or if I didn’t. I only dated a handful of people before I got sick, and none of them were serious relationships. And maybe saying a handful is a bit of an exaggeration because I really didn’t have many relationships. I was happy with just having friends. Once I got sick I guess it became someone to lean on. Someone to help me when I was sick or down. I got sick about 4 years ago now, and I’ve dated more people in the last 3 years then I think I did in my whole life.
In saying that, it’s never easy to date. Not only do I have Crohn’s Disease but I also have an Ileostomy, not exactly a first date conversation! The first guy I dated after I got sick was great about everything he looked it all up and found out everything he could, which was great because I still wasn’t 100% open about talking about it all. The next guy didn’t mind, as long as I was healthy, and so most of my relationships went. I think it took about a month before I told my first boyfriend about everything. I was scared of what he would think, what he would do, and whether he would accept it, and thankfully he did. I’m still scared when I tell a guy about everything. What if I fall for someone, what if I love someone and they don’t want to be with me because of everything. I know that he definitely isn’t worth it if he doesn’t accept me the way I am, but it still isn’t easy.
I learned that guys aren’t worth it if they don’t accept everything, but I learnt it the hard way. I dated one guy, and once I told him about everything, he seemed ok at first. I went to work, and he said while I was at work he would look everything up. Needless to say, I never heard from him again. I guess he got scared, maybe it was too much for him to handle, but it hurt. He could have done it all so differently, but he didn’t, and I had to accept what he did, and why he didn’t want to be with me. I think that made me a bit more cautious, I told guys quicker because I didn’t want to get hurt. I would tell them right away, that way if they wanted to leave then they could just take off before I got attached. I would no longer be hurt because someone didn’t want to deal with my disease. When it really comes down to it, they don’t have to really deal with it. They just have to understand what I’m going through.
I guess in the end as hard as it all was to accept it made me stronger. It made me accept everything that I have to deal with on a daily basis, and it made me realize that no guy, no matter how much you may like/love them, is worth a single tear. (And no girl is either.) If they love you then they wont care about anything, and if they care or it bothers them, then they aren’t worth your time!
“I have Crohn’s Disease, Crohn’s Disease does not have me!”
~Colleen Lynn
In saying that, it’s never easy to date. Not only do I have Crohn’s Disease but I also have an Ileostomy, not exactly a first date conversation! The first guy I dated after I got sick was great about everything he looked it all up and found out everything he could, which was great because I still wasn’t 100% open about talking about it all. The next guy didn’t mind, as long as I was healthy, and so most of my relationships went. I think it took about a month before I told my first boyfriend about everything. I was scared of what he would think, what he would do, and whether he would accept it, and thankfully he did. I’m still scared when I tell a guy about everything. What if I fall for someone, what if I love someone and they don’t want to be with me because of everything. I know that he definitely isn’t worth it if he doesn’t accept me the way I am, but it still isn’t easy.
I learned that guys aren’t worth it if they don’t accept everything, but I learnt it the hard way. I dated one guy, and once I told him about everything, he seemed ok at first. I went to work, and he said while I was at work he would look everything up. Needless to say, I never heard from him again. I guess he got scared, maybe it was too much for him to handle, but it hurt. He could have done it all so differently, but he didn’t, and I had to accept what he did, and why he didn’t want to be with me. I think that made me a bit more cautious, I told guys quicker because I didn’t want to get hurt. I would tell them right away, that way if they wanted to leave then they could just take off before I got attached. I would no longer be hurt because someone didn’t want to deal with my disease. When it really comes down to it, they don’t have to really deal with it. They just have to understand what I’m going through.
I guess in the end as hard as it all was to accept it made me stronger. It made me accept everything that I have to deal with on a daily basis, and it made me realize that no guy, no matter how much you may like/love them, is worth a single tear. (And no girl is either.) If they love you then they wont care about anything, and if they care or it bothers them, then they aren’t worth your time!
“I have Crohn’s Disease, Crohn’s Disease does not have me!”
~Colleen Lynn
12 Days of Christmas - Day 2: Writing a Letter
Hey Gutsy Generation,
Ready for challenge #2?
The challenge (if you choose to accept): write a letter to someone that compliments them for the positive impact they've had in your life.
..... then tell us who you wrote to!
Jennie
Ready for challenge #2?
The challenge (if you choose to accept): write a letter to someone that compliments them for the positive impact they've had in your life.
..... then tell us who you wrote to!
Jennie
Sunday, December 12, 2010
12 Days of Christmas - Day 1: Hugs :)
Hey Gutsy Generation,
Today marks the first day for the 12 days of the gutsy generation Christmas... and day 1 's task is to:
Give 5 hugs today.
There's no real rules as to who to give these hugs to... so get creative! And let us know who you shared your hugs with...
Hugs from me to me :)
Ash :)
Today marks the first day for the 12 days of the gutsy generation Christmas... and day 1 's task is to:
Give 5 hugs today.
There's no real rules as to who to give these hugs to... so get creative! And let us know who you shared your hugs with...
Hugs from me to me :)
Ash :)
Introducing: The Gutsy Generation 12 Days of Christmas!!!!!
Hi Gutsy Generation Superhero's!
Your Youth Advisory Council thought it would be a cool to count down the 12 days of Christmas - we begin tomorrow (or in 15 min, if you want to get technical :P ) and here is the basis of it:
Each day we will post on the blog and via facebook and twitter the themed activity for the day... so what could this themed activity be?! Well... you'll just have to wait and see! We're hoping we can all come together and get involved in these daily activities as we count down the days to Christmas - let's have fun with it, guys! Post and write your feedback on each activity! And if you have ideas - let us know too! Maybe we'll sneak it in between now and Christmas! This is open to everyone and most of these are 'Gutsy' themed ;)
Hope your Christmas shopping is going well, and you're taking time to begin to enjoy the holiday season.
Hugs from one individual living with IBD to another,
xo\
Ash :)
Your Youth Advisory Council thought it would be a cool to count down the 12 days of Christmas - we begin tomorrow (or in 15 min, if you want to get technical :P ) and here is the basis of it:
Each day we will post on the blog and via facebook and twitter the themed activity for the day... so what could this themed activity be?! Well... you'll just have to wait and see! We're hoping we can all come together and get involved in these daily activities as we count down the days to Christmas - let's have fun with it, guys! Post and write your feedback on each activity! And if you have ideas - let us know too! Maybe we'll sneak it in between now and Christmas! This is open to everyone and most of these are 'Gutsy' themed ;)
Hope your Christmas shopping is going well, and you're taking time to begin to enjoy the holiday season.
Hugs from one individual living with IBD to another,
xo\
Ash :)
Friday, December 10, 2010
The Red Binder Collection
Humanity has a record of life - fossils, hieroglyphics, the Bible, Shakespeare, movies, telegrams, letters, postcards, emails, and blogs. And I have a red binder collection.
Although it may be no ‘MacBeth’, my red binder collection is my budding collection that will see an adoption of a third red binder today. What, you may ask, are these binders and what do they contain?
The simple answer: work. Each semester, I collect my best and favorite work from my classes along with important handouts and I cluster them together in a lovely little red Boston University binder. The goal: 8 red binders by graduation. Progress: right on track.
Many university classes have given way to the ‘green’ shove and have students submit work online. But at the end, I like to have a physically tangible object to hold and look back over. So I print essay after essay, syllabus after syllabus to file them for posterity in my red binder.
The red binder is an accomplishment - a Cesarean “I came, I saw, I conquered”. This past summer, my Grandad rifled through the books - dutifully reading every piece of paper I had slotted in there. It’s my bridge to my family - and ‘here-look-what-I-did-at-school’ for them to hold on to.
There are moments when you want to hold your arms up the sky and smile, when you feel like you’re in exactly the right place at exactly the right time. I have had so many moments like that during my time at BU, but especially this semester. I am right here right now, I fit into the world, and my work fits into that red binder.
I came. I saw. I tried. I worked. I conquered. And then I put it all in a red binder.
Jennie
Although it may be no ‘MacBeth’, my red binder collection is my budding collection that will see an adoption of a third red binder today. What, you may ask, are these binders and what do they contain?
The simple answer: work. Each semester, I collect my best and favorite work from my classes along with important handouts and I cluster them together in a lovely little red Boston University binder. The goal: 8 red binders by graduation. Progress: right on track.
Many university classes have given way to the ‘green’ shove and have students submit work online. But at the end, I like to have a physically tangible object to hold and look back over. So I print essay after essay, syllabus after syllabus to file them for posterity in my red binder.
The red binder is an accomplishment - a Cesarean “I came, I saw, I conquered”. This past summer, my Grandad rifled through the books - dutifully reading every piece of paper I had slotted in there. It’s my bridge to my family - and ‘here-look-what-I-did-at-school’ for them to hold on to.
There are moments when you want to hold your arms up the sky and smile, when you feel like you’re in exactly the right place at exactly the right time. I have had so many moments like that during my time at BU, but especially this semester. I am right here right now, I fit into the world, and my work fits into that red binder.
I came. I saw. I tried. I worked. I conquered. And then I put it all in a red binder.
Jennie
Monday, December 6, 2010
Topic 2: The SCD Diet
Hey Guys,
Some people, who i've met in person have found relief (even complete remission) when following the Specific Carbohydrate Diet popularized by ELaine Gottschall's book: Breaking the Vicious Cycle. You can check out her website at: http://www.breakingtheviciouscycle.info/ . This website tells you the theory that this way of eating is based on. Some people have found relief, others have not. But, if it could help you, even a little bit, I figured its worth the while - but firstly, do your research first, and make the decision for yourself. I myself have not been successful with it - but I thought if a large chunk of people have found relief, then why not try to spread the word if theres a high possibility it could help someone else? And for the people that haven't found success in it - what happened? If you feel like sharing - let's get the discussion going! Researchers are actually looking into this particular kind of diet and WHY it is helping some people.
If you want more information on it there's a popular site that people have checked out and found helpful: http://pecanbread.com/p/intro/nt/introhome.html .
Right now too, two guys have made a more modern style site that tries to help others enhance their success with this diet: http://scdlifestyle.com/
They have lots of recipes, and blog entries to learn more about this way of eating and the struggles you might face along the way. They have also recently been interviewing 'friends' (others with cool websites with more information and support for those trying the diet).
Two nice cook books that are popular on amazon are (I have a copy of these too - they have nice pictures):
1. Eat Well Feel Well - By Kendall Conrad
" When her daughter was diagnosed with a dangerous digestive problem that left her weakened and sick, author Kendall Conrad started searching for a way to save her child’s failing health. The answer came when a nutritionist recommended the Specific Carbohydrate Diet (SCD). Created by Elaine Gottschall, this revolutionary program is extraordinarily effective in relieving the debilitating and often painful symptoms of ulcerative colitis, celiac disease, diverticulitis, IBS, Crohn’s disease, and other common ailments. Simply by eliminating virtually all starch and complex sugars and eating a balance of smart carbohydrates, good proteins and fats, and essential vitamins and minerals, many people experience a complete restoration of digestive health. For Conrad’s daughter, the results were incredible. Thrilled with her daughter’s rapid recovery, she began creating recipes for delicious dishes for the whole family, following Gottschall’s guidelines, without sacrificing an ounce of taste or variety."
http://www.amazon.ca/Eat-Well-Feel-Carbohydrate--Compliant/dp/0307590607/ref=sr_1_1?ie=UTF8&qid=1291688322&sr=8-1
2. Healing Foods: Cooking for Celiacs, Colitis, Crohn's and IBS - Sandra Ramacher
http://www.amazon.ca/Healing-Foods-Cooking-Celiacs-Colitis/dp/0980382807/ref=sr_1_6?ie=UTF8&qid=1291688441&sr=8-6
The Crohn's and Colitis FOundation of America has even recognized its potential: http://www.ccfa.org/about/news/scd .
So, remember - I am in no way endorsing anything here - just trying to hear what other people have to say about this and spark dicsussion - So share something!!! Post a comment! I really want to be alive when we find the cure for IBD.
If you've used a complementary or alternative medicine therapy that has helped you - why not spread the word? There's a guy named Reid Kimball putting together a DVD:
As Taken directly from his website: (http://crohnsend.com/)
"WANTED: Crohn’s End is a documentary featuring people with Crohn’s disease and Ulcerative Colitis who have opted to use alternative treatments when nothing else is working. They have listened to their gut and took a proactive approach to ending their disease."
So, if you have found success with something, maybe you've wanted a chance to share it with others that have also found success too. You can here: http://crohnsend.com/.
Hugs,
Ash
Some people, who i've met in person have found relief (even complete remission) when following the Specific Carbohydrate Diet popularized by ELaine Gottschall's book: Breaking the Vicious Cycle. You can check out her website at: http://www.breakingtheviciouscycle.info/ . This website tells you the theory that this way of eating is based on. Some people have found relief, others have not. But, if it could help you, even a little bit, I figured its worth the while - but firstly, do your research first, and make the decision for yourself. I myself have not been successful with it - but I thought if a large chunk of people have found relief, then why not try to spread the word if theres a high possibility it could help someone else? And for the people that haven't found success in it - what happened? If you feel like sharing - let's get the discussion going! Researchers are actually looking into this particular kind of diet and WHY it is helping some people.
If you want more information on it there's a popular site that people have checked out and found helpful: http://pecanbread.com/p/intro/nt/introhome.html .
Right now too, two guys have made a more modern style site that tries to help others enhance their success with this diet: http://scdlifestyle.com/
They have lots of recipes, and blog entries to learn more about this way of eating and the struggles you might face along the way. They have also recently been interviewing 'friends' (others with cool websites with more information and support for those trying the diet).
Two nice cook books that are popular on amazon are (I have a copy of these too - they have nice pictures):
1. Eat Well Feel Well - By Kendall Conrad
" When her daughter was diagnosed with a dangerous digestive problem that left her weakened and sick, author Kendall Conrad started searching for a way to save her child’s failing health. The answer came when a nutritionist recommended the Specific Carbohydrate Diet (SCD). Created by Elaine Gottschall, this revolutionary program is extraordinarily effective in relieving the debilitating and often painful symptoms of ulcerative colitis, celiac disease, diverticulitis, IBS, Crohn’s disease, and other common ailments. Simply by eliminating virtually all starch and complex sugars and eating a balance of smart carbohydrates, good proteins and fats, and essential vitamins and minerals, many people experience a complete restoration of digestive health. For Conrad’s daughter, the results were incredible. Thrilled with her daughter’s rapid recovery, she began creating recipes for delicious dishes for the whole family, following Gottschall’s guidelines, without sacrificing an ounce of taste or variety."
http://www.amazon.ca/Eat-Well-Feel-Carbohydrate--Compliant/dp/0307590607/ref=sr_1_1?ie=UTF8&qid=1291688322&sr=8-1
2. Healing Foods: Cooking for Celiacs, Colitis, Crohn's and IBS - Sandra Ramacher
http://www.amazon.ca/Healing-Foods-Cooking-Celiacs-Colitis/dp/0980382807/ref=sr_1_6?ie=UTF8&qid=1291688441&sr=8-6
The Crohn's and Colitis FOundation of America has even recognized its potential: http://www.ccfa.org/about/news/scd .
So, remember - I am in no way endorsing anything here - just trying to hear what other people have to say about this and spark dicsussion - So share something!!! Post a comment! I really want to be alive when we find the cure for IBD.
If you've used a complementary or alternative medicine therapy that has helped you - why not spread the word? There's a guy named Reid Kimball putting together a DVD:
As Taken directly from his website: (http://crohnsend.com/)
"WANTED: Crohn’s End is a documentary featuring people with Crohn’s disease and Ulcerative Colitis who have opted to use alternative treatments when nothing else is working. They have listened to their gut and took a proactive approach to ending their disease."
So, if you have found success with something, maybe you've wanted a chance to share it with others that have also found success too. You can here: http://crohnsend.com/.
Hugs,
Ash
Crohns DVD - GET YOUR FREE COPY TODAY!
Hey Gutsy Guys and Gals ;)
Super exciting news: Do you want to see me in a DVD? lol, jk, I know you don't but, that Crohns DVD that I mentioned before is now available through the CCFC website. Order your FREE Copy at http://www.ccfc.ca/English/info/resources.html#dvd . Enjoy :)
Let me know what you think - loads of interesting topics with a realy focus on the positive side of Crohns - its loaded loaded loaded with inspiring stories - how great is that? :)
Hugs,
Ash
Super exciting news: Do you want to see me in a DVD? lol, jk, I know you don't but, that Crohns DVD that I mentioned before is now available through the CCFC website. Order your FREE Copy at http://www.ccfc.ca/English/info/resources.html#dvd . Enjoy :)
Let me know what you think - loads of interesting topics with a realy focus on the positive side of Crohns - its loaded loaded loaded with inspiring stories - how great is that? :)
Hugs,
Ash
Friday, December 3, 2010
Calm Down
The other day, I met with a professor about a research project proposal I am submitting for next semester. I have been working on it - with him - for the past few weeks and the deadline is next week. I met with him bright and early, my cheeks flush from the chilly weather and a raspberry tea secured in my hand. He smiled at me and we both sat down.
“Jennie,” he said, “you are very energetic and hardworking and smart,” he paused, “but you have to calm down.” My smile widened as he cleared his throat. He continued to explain my eagerness needed to be tamed, that the application would get in on time and that I had time to breathe.
I didn’t interrupt him, or correct him, though I could have. It wasn’t really about not being calm, it was about finally having the time and the health to do the project. If anything, I was finally calm because I could look at a calendar and not have to plan in flare ups and hospitalizations, surprising to me (but probably not to the non-IBD community) there is a lot of time to get things done.
Maybe it’s because it’s December now, which means an impending holiday break and a prodigal return home, or maybe it’s because it’s been over 16 weeks since my slicing and dicing. Or maybe it’s just because. Whatever the reason, I have had many flashbacks to my summer and all of the things that happened. First there was the little babies that I looked after, then a scope, then hospitalizations and needles and TPN and tubes and roomies, and Boston, and more tubes and needles, and surgery, and recovery. My biggest frustration throughout the summer was being unable to be productive. I hated sitting in my bed watching television for hours and hours on end, I wanted to be doing things in the real world and to be contributing to it.
So now that I am back on my feet, I don’t want to stop doing things. It is fulfilling and exciting to be able to rely on my body for once. My professor has a point - you have to be calm to see clearly and think clearly. But... maybe calm chaos isn’t so bad.
Take a deep breath, and get excited - you have the whole world waiting for you.
Jennie
“Jennie,” he said, “you are very energetic and hardworking and smart,” he paused, “but you have to calm down.” My smile widened as he cleared his throat. He continued to explain my eagerness needed to be tamed, that the application would get in on time and that I had time to breathe.
I didn’t interrupt him, or correct him, though I could have. It wasn’t really about not being calm, it was about finally having the time and the health to do the project. If anything, I was finally calm because I could look at a calendar and not have to plan in flare ups and hospitalizations, surprising to me (but probably not to the non-IBD community) there is a lot of time to get things done.
Maybe it’s because it’s December now, which means an impending holiday break and a prodigal return home, or maybe it’s because it’s been over 16 weeks since my slicing and dicing. Or maybe it’s just because. Whatever the reason, I have had many flashbacks to my summer and all of the things that happened. First there was the little babies that I looked after, then a scope, then hospitalizations and needles and TPN and tubes and roomies, and Boston, and more tubes and needles, and surgery, and recovery. My biggest frustration throughout the summer was being unable to be productive. I hated sitting in my bed watching television for hours and hours on end, I wanted to be doing things in the real world and to be contributing to it.
So now that I am back on my feet, I don’t want to stop doing things. It is fulfilling and exciting to be able to rely on my body for once. My professor has a point - you have to be calm to see clearly and think clearly. But... maybe calm chaos isn’t so bad.
Take a deep breath, and get excited - you have the whole world waiting for you.
Jennie
Wednesday, December 1, 2010
Exploring New Horizons... TOPIC 1: Probiotics?
Hey Gutsy Guys and Gals,
So... Maybe its just the person that I am, but Im ALWAYS looking for a CURE for Crohns (and Ulcerative Colitis) and I've been looking since I was 9 and went to visit a Naturopath. So I know the area of Complementary and Alternative Medicine (CAMs) is complex and there are many many treatments that fall under this realm but I really want to reach out with others that may have delved down this realm too... I want to make my next blog posts about different things that I've tried. Im really curious to know if anyone else has tried these things also. Im really curious to know what things have helped make their disease more manageable.... and I want to make this just a discussion, not a push for any such treatment... we're all different and what works for someone DOESNT work for everyone... I know this... I've tried lots of things.
So how about we delve into the first one: Probiotics. In my science undergrad at McMaster University I worked with Dr. John Bienenstock (One of the forefathers to discover the Gut-Associated-Lymphoid-Tissue - or the GALT) in his lab in Hamilton, called the Brain and Body Institute. There I did my thesis on the latest reviews on probiotics and commensal organisms (Bugs that are found in our gut). I was super super glued to everything I could learn on probiotics and these 'bugs'. I got to check out live intestine's in a waterbath. They were sectioned and placed in here and oriented so that they could be straight - and you know what? Peristalsis (The contraction in our gut that moves the food along) could be visible - how is this possible when the intestines were removed from the organism??? Welll.... It gut has its own nervous system! And it could last a day or two in this electrolyte-rich water bath. AWESOME! So I got to use electrophysiology (a fancy word for measuring the nerve impulses) to see what would happen if different concentrations of probiotics were put into lumen (or the inside) of the intestines... and guess what? Yup, you guessed it, probiotics (Lactobacillis) actually produced some results! But if there's one thing I've learned about science, lots of studies need to be done prove something.
Does anyone use Probiotics? Does anyone feel better using them? How do they feel better (or worse)? Is anyone or has anyone else done research with probiotics that they could share? Any stories to share? Come on guys! Share your story with other gutsy generation youth - we're here to help each other :) And possibly learn from each other.
Hugs :) ,
Ash
P.s. Theres some great articles on the www.ccfc.ca website - Check it out and keep up to date with the latest research!
So... Maybe its just the person that I am, but Im ALWAYS looking for a CURE for Crohns (and Ulcerative Colitis) and I've been looking since I was 9 and went to visit a Naturopath. So I know the area of Complementary and Alternative Medicine (CAMs) is complex and there are many many treatments that fall under this realm but I really want to reach out with others that may have delved down this realm too... I want to make my next blog posts about different things that I've tried. Im really curious to know if anyone else has tried these things also. Im really curious to know what things have helped make their disease more manageable.... and I want to make this just a discussion, not a push for any such treatment... we're all different and what works for someone DOESNT work for everyone... I know this... I've tried lots of things.
So how about we delve into the first one: Probiotics. In my science undergrad at McMaster University I worked with Dr. John Bienenstock (One of the forefathers to discover the Gut-Associated-Lymphoid-Tissue - or the GALT) in his lab in Hamilton, called the Brain and Body Institute. There I did my thesis on the latest reviews on probiotics and commensal organisms (Bugs that are found in our gut). I was super super glued to everything I could learn on probiotics and these 'bugs'. I got to check out live intestine's in a waterbath. They were sectioned and placed in here and oriented so that they could be straight - and you know what? Peristalsis (The contraction in our gut that moves the food along) could be visible - how is this possible when the intestines were removed from the organism??? Welll.... It gut has its own nervous system! And it could last a day or two in this electrolyte-rich water bath. AWESOME! So I got to use electrophysiology (a fancy word for measuring the nerve impulses) to see what would happen if different concentrations of probiotics were put into lumen (or the inside) of the intestines... and guess what? Yup, you guessed it, probiotics (Lactobacillis) actually produced some results! But if there's one thing I've learned about science, lots of studies need to be done prove something.
Does anyone use Probiotics? Does anyone feel better using them? How do they feel better (or worse)? Is anyone or has anyone else done research with probiotics that they could share? Any stories to share? Come on guys! Share your story with other gutsy generation youth - we're here to help each other :) And possibly learn from each other.
Hugs :) ,
Ash
P.s. Theres some great articles on the www.ccfc.ca website - Check it out and keep up to date with the latest research!
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